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The Real Me: Life with a Sensory Integration Disorder

Ruchie Bromberg

Let’s meet Akiva and discover what life is like with a sensory integration disorder. And I can’t wait to hear your story. I would love to interview you!

Wednesday, May 09, 2018

Name: Akiva

Location: Modiin Illit 

Age: 12

Dear Readers, 

Have you ever been bothered by your clothing? Do the tags on your shirt bother your skin? Do you hate being hugged? Do loud noises bother you?

All our knowledge about the world around us is acquired through our senses. The information is sent to the brain and the brain interprets and organizes it, giving us the ability to respond correctly. This is known as sensory integration.

In some kids, sensory integration doesn’t develop as it should. They suffer from sensory integration dysfunction. The information that their senses pick up is not organized correctly in their brain. These kids can be affected in many different ways. Let us meet Akiva and discover what life is like with a sensory integration disorder.

Can’t wait to hear your story. I would love to interview you!

All the best,

Ruchie



Dear Diary,

Oh, no, there goes the alarm clock again. The sound really drives me crazy. I have to get up and get ready for school, but I can’t do anything with that terrible, piercing sound. Quickly, I turn off the alarm clock and take a deep breath. I am getting more used to the noise, but it still bothers me a lot.

I am pretty good at remembering to prepare my clothes the night before. When I was younger, the tags in my shirt would feel like sandpaper scratching against my back. Eventually, I cut all the tags out of my clothes and solved that problem. I usually try to cut off the tags right when I get new clothing so I never have to feel the tag rubbing against my skin.

I also only like to wear cotton pants. It isn’t always easy to find the exact material that I like, but if I’m wearing itchy pants, I can’t focus all day. All I want to do is get into my comfortable pajamas. Once I was having a very hard time getting ready in the morning and my mother threatened to take me to school in my pajamas. I loved the idea. I knew she wouldn’t really do it, but I almost wished she would. I couldn’t explain why, but the thought of scratchy pants just made me cringe.

This morning, my mother is in a rush and I didn’t want to bother her to make my oatmeal, but only my mother makes it just the way I like it. I don’t like eating anything else in the morning. I used to have just oatmeal with brown sugar added, but my mother put in bananas the other week. I don’t like to try new things, but I forced myself to try. I actually got used to it after a while.

I think I am finally ready to leave for school. Honestly, I hate the school bus. It’s so loud and noisy. My parents bought me earphones to listen to music. It was the best birthday present I ever got. The earphones block out a good part of the loud noises on the bus, and now I can tolerate riding on one. (Excerpted from Mishpacha Jr., Issue 709)

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